Hopefully those of you that are stuck in a deep, seemingly hopeless pit with your RLS, can draw some inspiration from this study.
In 1993, the Institute of Noetic Sciences published "Spontaneous Remission: An Annotated Bibliography."
In this work, the authors defined spontaneous remission as "the disappearance, complete or incomplete, of a disease or cancer without medical treatment or treatment that is considered inadequate to produce the resulting disappearance of disease symptoms or tumor."
From their website:
www.noetic.org/research/project/spontaneous-remission
"The Remission Project catalogued the world’s medical literature on the subject and the resulting book was the largest database of MEDICALLY REPORTED cases of spontaneous remission in the world, with more than 3,500 references from more than 800 journals in 20 different languages.
An example of "pure remission" would be a patient diagnosed with bone cancer, who refused treatment and who is disease-free more than 10 years later (so we're not talking about the placebo effect).
Spontaneous remission of cancer has been reported in almost every type of cancer. The largest number of cases are reported in a few types of cancer: neuroblastoma, renal cell carcinoma, melanoma, and leukemias/lymphomas comprise the largest number of cases reported.
Psychological and spiritual factors play a role in remission and survival is evident from the stories of people who have experienced unexplained recoveries from cancer and other diseases, but since the role of mind and the spirit is different for each person, it is difficult to generalize their influence."
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SO, WHAT DOES THIS HAVE TO DO WITH RESTLESS LEGS SYNDROME?
Even though there is "no cure" for cancer, thousands of people over the years have beat the disease.
And there is no set way to this "cure." There's no pattern. They all had to do it in a way that WORKED FOR THEM.
Through a combination of a focused determination, perseverance, courage, changes in diet, beliefs & attitudes, physical exercise, meditation, prayer etc. they beat an unbeatable disease.
They overcame their cancer by creating a cure through trial and error, based on their own life experience, using the successes of others as a "guideline."
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"THERE IS NO CURE FOR RESTLESS LEGS SYNDROME!!!!!!"
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Yes, I've heard it a million times.
For several years now I've posted on RLS community boards information that I believe would be helpful to those that are suffering.
The most common reaction I get is that there is "NO CURE FOR RLS!" (followed by YOU QUACK, YOU FRAUD, YOU DISGUSTING EVIL PERSON etc.).
In fact the reaction is so strong I've been banned for good from RLS.uk. And on top of that, no current member is even allowed to reference me or my website.
I was banned from both RLS.org and RLS.org.au but was allowed back to both. I know I'm currently on thin ice on one of them. I'm on thin ice, and I censor myself so intensely it's embarrassing, just to avoid getting the boot again.
One nutcase that runs a Yahoo RLS group notified the FDA about me.
All because I claim there is a cure.
I guess if you can invoke that type of reaction you must be doing something right?
It is criminal that these so called "moderators" screen out the information just because they disagree with it - information that the new or casual observer is unable to read and decide for his or herself whether or not they would like to follow up on it.
I understand that in their minds, the moderators are protecting their flock, but the truth is they have serious control issues that are condemning their members to "life on meds" - continually brainwashing them with the idea that THERE IS NO CURE.
"Stay on your meds and wait with the rest of us for a cure!"
That's the message.
THE DEFINITION OF INCURABLE
Here is the definition of Incurable from Dictionary.com
adjective
1. not curable; that cannot be cured, remedied, or corrected:
an incurable disease.
2. not susceptible to change.
So, by definition, since I had RLS and no longer have it (and many others as well) that means RLS is actually NOT incurable. It is then by definition, curable.
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WHY ARE ALL THE SUCCESS STORIES IGNORED?
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There are hundreds, probably thousands of people that suffered from RLS, and because of changes in their life, no longer do.
Yet the most common response I get to my claim is not "what did you do to break free, for God's sake, please tell me!"
The most common response is "you didn't really have it" or even better "you're just making this all up!"
It sounds like a really bad parent, doesn't it?
Of course the claim of these hardliners (and there are many of them) is that their RLS is REALLY REALLY REALLY BAD ... something the average sufferer couldn't even imagine, or endure.
It's only the people with mild or pretend RLS that get better.
It's the heroic ones that still suffer with the "TRUE" RLS.
PEOPLE TAKE IT PERSONALLY
When I post something that hints that there is a cure for RLS, people start freaking at me, interpreting my post as an attack on their character.
They feel that I'm telling them that because they are on meds, they are weak.
Nothing could be further from the truth.
The reason I post the information is so that people who are trapped in a living Hell can "consider" alternatives. I'm only trying to let them know that there are options.
If you escaped from something that was inescapable, would you not try to help others who are still trapped?
It's human nature.
The whole foundation of self-help groups is based upon this principle.
YOU CAN STAY ON MEDS AND DEVELOP A PLAN OF ACTION
My wife Barb developed a three year multi-stage plan to quit smoking. I had to respect that. That's what SHE needed to do in order to quit. She developed a plan of action based on HER life experience and HER character and set it in motion.
And it worked. At the end of the process she stopped smoking. She hasn't had a cigarette in eight years.
However, if she was to push her method on a friend who still smoked, it would be violently rejected.
Her friend has to develop her OWN plan of action.
Her friend, when she decides to quit, can reference what has worked for other people, but for her to succeed, it has to be done HER way, on HER terms.
The cure for RLS is no different
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"I TRIED EVERYTHING AND IT DIDN'T WORK!!!!"
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The most common excuse is "There is no cure because I tried everything and it didn't work!"
That's like saying "I TRIED AA AND IT DOESN'T WORK ... SO I HAVE NO CHOICE BUT TO CONTINUE DRINKING!"
I know from several people that I've talked to that they have dramatically changed their diet. Yet, they still suffer.
It doesn't mean that there isn't a solution for them. All it means is that they haven't found it yet.
Every "cure" is going to be a bit different for each person. Just like with spontaneous remission and my wife's smoking.
But, there IS a cure that exists for every one of you reading this.
It all comes down to how much effort are you willing to put into finding it? And are you willing to change your actions, beliefs and attitudes?
SO WHO IS THIS "EXPERT" THAT SAYS THERE IS NO CURE?
Who is this mystery person that originally informed the world that there is no cure for Restless Legs Syndrome?
Maybe it's Dr. Mark Buchfuhrer, the legendary RLS specialist "Dr. B" that used to be in a Mirapex commercial?
It can't be any of the doctors that I've quoted from articles and studies. They're all quacks.
Regardless of who the source is, I've never been shown one solid piece of evidence showing that RLS is not curable. In fact it's quite the opposite.
It's always just a knee-jerk reaction, with no evidence to support the "incurable" claim.
It's kind of like atheists continually asking people to prove there is a God. Yet, they've never offered one grain of evidence proving there isn't.
MY SMALL BUT GROWING DATABASE OF SUCCESS STORIES
The truth is more and more people are taking the situation into their own hands and are making the necessary changes to become free of their RLS.
You can read about several of them on this website.
IN CLOSING
Let's face it, what people really mean when they say there is no cure for RLS, is that there is no DRUG that will take it away.
All the successes that happen to the flaky people are anecdotal. There's no substance to any of it.
For those of you suffering from RLS, I wish you the very best.
I sincerely hope that you can draw some inspiration from the Spontaneous Remission Project.
You can read it online here:
www.noetic.org/library/publication-books/spontaneous-remission-annotated-bibliography
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